If you’ve ever wanted to explore the scientific knowledge of the Unexplained Dermopathy, this free online Morgellons course ticks off every check box for what a real learning experience should be! Through careful selection of media and research, this class accomplishes its’ main objective of educating participants about the basic facts of Morgellons Disease.
What is Morgellons (how to identify Morgellons in images)
What isn’t Morgellons (examples of images that are mislabeled as Morgellons)
What pathogens are associated with Morgellons
Why is there a controversy surrounding Morgellons
What treatment options are available for Morgellons patients
How to advocate for better care and earlier diagnosis of Morgellons patients
All of these are explored and there is even a certificate at the end for 100% completion! Check into the link below and let us know if you participated in the “Introduction to Morgellons” online course.
Wikipedia credibility in question after conflicting information for Morgellons disease appears between regional platforms. Recently, Wikipedia France updated its article about Morgellons on their page which curates facts concerning the rare skin condition. This left Wikipedia USA in an embarrassing situation as the same evidence is strangely absent on its page about Morgellons Disease.
We reported two years ago about the information being included on the France Wikipedia page regarding Morgellons, however since that time new information has appeared. Below we present excerpts from the Wikipedia article, translated, in order, and within their respective categories. Please visit the page yourself, however, to see the entire article in context. You can utilize Google Translate, or Edge Browser Translator to read the text in English.
The previous clinical picture is heterogeneous, but it may correspond to the category of “parasitic delirium”.
The few authors convinced of the existence of a somatic origin to Morgellons (neither delusional disorder ,nor fake disorder and others…) reject the conclusions of the Pearson report (2012) of the CDC. Their criticism is based on the fact that the study did not include the appropriate study subjects, and that it cannot exclude an unidentified or undecoated physiological cause.2. They therefore propose a new case definition for the subjects to be studied: chronic skin lesions of spontaneous appearance (it is the lesions that cause scratching, and not scratching or extraction attempts that cause the lesions), type of ulcerations, and where we find (distinctive criterion) white, black or colored filaments included under the skin or piercing through it. These filaments require, to be visible, a magnification x502.
According to M Middelveen, these filaments are composed of organic proteins, mainly keratin and collagen abnormally produced from keratinocytes and fibroblasts of the skin epithelium. It would be equivalents of very fine hair or hair. In view of a statistically frequent association with a diagnosis of chronic Lyme, the author hypothesizes that borrelia (intracellular bacteria) penetrating fibroblasts could induce this production2.
Skeptics highlight the fact that the elements found are very diverse, inert (such as textile fibers, fragments of nail polish …) or organic (hair, plant or insect debris …) by fortuitous or voluntary deposits14,27,30. The association with a chronic form of Lyme disease is all the less convincing because its biological diagnosis is itself controversial.
The possible existence of an association with a borreliainfection remains under discussion: for a very large majority, Morgellons are only a variant of psychogenic disease, or an unexplained collective syndrome, some believe that there could exist, among Morgellons, a real subgroup, of dermatosis or pruritus, of infectious neurological origin (chronic infection with borrelia or more generally with spirochetes)20,45.
The way Morgellons is blanketly presented in the United States may account for why so many patients endure undue stigma and rejection.
Clearly, between the two pages it seem the audience in France is going to have more information than those in the United States. This is obviously misinformative to the American audience and may be a legitimate conspiracy worth reviewing more closely.
Morgellons Survey is proud to present preliminary results of its almost five year long scientific survey. The survey will close on December 23, 2021 after five years from initially posting and preceding peer-review. We have removed the 250 entry monthly limit for the next four weeks! If you would like to participate please do so before December 21st and preferably within the next month.
Most preliminary results below are adjusted to remove all multiple entries. If the same email address submitted multiple times only the latest entry is counted. Any requests to remove specific entries have been completed. Unadjusted adds +40 entries with the majority (+36) being double entries (twice).
Morgellons Survey Preliminary Results
Again, the last day to submit your entry for this Morgellons Survey will be December 23 2021. Afterwards this data will be submitted for scientific peer-review and ultimately published in a prestigious scientific journal.
Please consider donating to help us continue towards this effort of scientific legitimization. Your continued support and contributions help keep us online and motivated towards achieving real world results for a serious and often debilitating, contested medical condition.
If you have not participated yet the survey is currently available below.
Morgellons in Turkey is a very real situation. The Holistic Medicine School in Turkey has produced a compelling YouTube video which highlights the evidence that Morgellons is associated with Lyme disease.
Ramadan Webinars Series Webinar 34: Lyme Disease and Chronic Inflammation
What about Dapsone for Morgellons? Several reports are trickling in about the potential for a repurposed “leprosy” drug to assist in eradicating spirochetal persister cells. Recently, Dr. Richard Horowitz published research which demonstrates efficacy of Dapsone in combination with other antibiotics. First, let’s review the science.
Dapsone For Lyme Disease
“Three patients with multi-year histories of relapsing and remitting Lyme disease and associated co-infections despite extended antibiotic therapy were each given double-dose dapsone combination therapy (DDD CT) for a total of 7-8 weeks. At the completion of therapy, all three patients’ major Lyme symptoms remained in remission for a period of 25-30 months. A retrospective chart review of 37 additional patients undergoing DDD CT therapy (40 patients in total) was also performed, which demonstrated tick-borne symptom improvements in 98% of patients, with 45% remaining in remission for 1 year or longer. In conclusion, double-dose dapsone therapy could represent a novel and effective anti-infective strategy in chronic Lyme disease/ post-treatment Lyme disease syndrome (PTLDS), especially in those individuals who have failed regular dose dapsone combination therapy (DDS CT) or standard antibiotic protocols. A randomized, blinded, placebo-controlled trial is warranted to evaluate the efficacy of DDD CT in those individuals with chronic Lyme disease/PTLDS.”
Dapsone or diaminodiphenyl sulfone (DDS) is a commonly used drug to treat skin conditions such as dermatitis herpetiformis, leprosy and acne. A know persister bacteria called mycobacterium leprae requires long-term treatment with intra cellular drugs, which include Dapsone. Other persister bacteria that have been identified in recent years include Borrelia burgdorferi, which is considered to be an agent of Lyme disease.
Richard Kuhns, a Chemical Engineer, who initially worked for Dupont and then left to start his own trek in life as a stress management consultant. Ten years into his new career everything was put on stop after he pulled a vine from a tree in his back yard from which he was showered with dust from a bird nest. It became his life-changing event. With no help from the medical community he was left on his own to find answers to the relentless symptoms of itching, biting, and non healing lesions. Through his experience of doing an elimination diet, he discovered there were certain foods that activated his symptoms and there were foods that deactivated the symptoms and with careful note taking over the course of a year or so he discovered what he calls, The King Diet, which has become the crux of his program.
What’s the difference between not having your life and having your life back?
Where did you attend school and what attracted you to chemical engineering?
Are you from New Jersey originally? What’s it like in your state?
What led you to self-help, hypnosis, and Biofeedback?
There was a scientific review of Biofeedback in 2019 which found strong evidence it has therapeutic benefits, which conditions can it treat?
How can Hypnosis help?
Can someone use Hypnosis on themselves and how does that work?
What are some simple ways people can manage stress?
When did you write your first book and what do you write about?
Are you working on a new book currently?
What led you to the world of #Morgellons?
What is the King’s Diet?
What are your thoughts on antibiotics?
Are there any supplements or vitamins that you find beneficial?
What is debriding soap and how does it work?
How are you doing today, do you have a maintenance protocol?
How can Morgellons patients avoid quacks?
How important is the community and if someone becomes separated from their support network for any reason including Morgellons, how can someone reconnect with that community and network?
How did you start your call-in show?
How did you meet Robin and when did she join you?
What kind of changes would you like to see in healthcare?
What’s the one thing someone should remember if they become desperate or despondent?
What other things are you passionate about?
How can someone engage with you if they want to try out your system?
This paper brings to light several fascinating facts which should result in more careful scrutiny of potentially infectious patients. Primarily, the realities of poly-microbial colonization are readily apparent. The paradigm of “one-patient, one-disease” is demonstrably obsolete. If a patient is managing a variety of spirochetal organisms then the potential for treatment-resistant persistence is magnified.
Learn more about the Morgellons Disease condition by reviewing these scientific conference presentation replays included in the playlist below.