Over the years I’ve taken dozens of photos of Morgellons fibers. Somewhere along the way I became confused about a particular image, and mistakenly believed it was my own. When I saw this image in a recent blog post by Make Well Nutritionals GmbH, I was angry that they had not asked my permission to reproduce it and did not credit me with the image. The only problem was, it isn’t my image.
Make Well in their response to my social media posts on Facebook and Twitter explained that they acquired the image on Wikipedia and that it was listed as originating from an author named “Lifenext“.
How did I become so misguided that I mistook someone else’s image as my own?
In May of 2017, I wrote an article called “Skin Cell Lyme Bacteria” where the image is first utilized on my blog. Researching the disputed image I started to recall seeing it on Wikipedia, but do not understand why I would not use my own Morgellons image instead. When I uploaded the image I left the name intact, which both offers a clue that the image was not mine (Morgellons is not associated with worms) and also the confusion that the image was mine.
My birthday is January 15, 1977, so often when I create user accounts I will add 77 as a suffix identifier. For example, jmurphree77 is a username I often utilize. Seeing the 77 at the end of the file reinforced my false belief that the image belonged to me.
The Dates Don’t Fit
This is the set of photos that I wrongly assumed the image originated from. The dates, however, are over a year apart (March 18, 2016 – August 4, 2017) solidifying in my mind that I had made an error and would need to issue an apology to Make Well Nutritionals GmbH.
Who is “Lifenext”?
That is the great mystery originating from the fallout of this error of mistaken Morgellons. Though I’ve searched, no conclusive leads have surfaced which would elicit who Lifenext actually is.
I did find another Make Well Nutritionals GmbH article that the image appears in, but only dead ends trying to determine who it actually belongs to.
I’m sorry, I was confused but genuinely thought the image was my own. I’m embarrassed for previously suggesting that the image was mine.
Sincerely, I apologize for insinuating that Make Well Nutritionals GmbH inappropriately used an image that I incorrectly assumed was my own. They have done nothing wrong and do greatly contribute to helping Morgellons patients.
I hope one day we can discover who the image actually belongs to. In the meantime, I will be double checking my own Morgellons images to ensure they are in fact mine.
What is the ICD and how well does it influence healthcare practices in America?
How likely is it that Morgellons will receive a medical code?
Is it true that better Lyme tests are being suppressed and that the CDC is being sued for this?
What is Munchausen by proxy syndrome and is the medical code for it being used in place of the recently removed medical code for congenital Lyme transmission? How did the removal for congenital Lyme transpire? *** See updated response below ***
Is it the case that the denial of timely diagnosis and responsible treatment for Lyme are profitable? Who does this negligence benefit?
We’ve seen in the media and on social networks how Lyme Literate doctors are labeled as quacks and kooks and the patients they treat as nutjobs. Is this a concentrated strategy and who is perpetuating it?
In your book, you talk about a lady who reported doctors whose tests revealed “too many” Lyme patients in the United Kingdom. How did this transpire and what was the eventual outcome?
What is the Tick-Borne Disease Working Group and was their first report to Congress beneficial for Lyme patients?
You talk about suffering from infections yourself in $Lyme, what infections are those and how have they affected your life?
Have you ever felt that you were marginalized by the medical system?
Is Lyme accepted if it is diagnosed clinically and will insurance pay for the treatments? Is it the case that long term antibiotics can improve Lyme patients quality of life?
What does it mean when patients develop Post Treatment Lyme Syndrome?
What should a patient do if they are desperate for treatment and proper diagnosis?
What are some of the unintended outcomes from this environment that denies patients early diagnosis and long-term treatment?
In your book, you describe how patients are offered euthanasia instead of antibiotics to treat Lyme. Is this for real?
Your book features extremely humorous and very personable cartoons by David Skidmore, how did you two end up working together?
Who are the Dream Team members and how did they assist in your efforts?
What are the current goals of yourself and the Dream Team?
What can people do who want to help you and the Dream Team make a difference in how Lyme patients are treated in our society?
*** UPDATED RESPONSE BY Jenna Luche-Thayer 8/8/19 ***
Munchausen by Proxy is a very rare mental health illness whereby a caregiver abuses a vulnerable person. The caregiver does this by fabricating an illness or injury in a person under his or her care, such as a child, person with a disability or an elderly adult. Confusion, misinformation, disagreement and ignorance regarding Lyme borreliosis and Lyme treatment has resulted in parents who have children with Lyme being wrongly accused of child abuse and/or Munchausen by Proxy in Europe, the US, Canada, and Australia.
Unfortunately, the medical disagreement over how to treat Lyme borreliosis has been wrongly used to make charges of child abuse and/or Munchausen by Proxy.
Fortunately, parents have successfully overturned these wrongful accusations.
Parents have also reported those persons who made the wrongful charges, and this has resulted in formal reprimands and other punishments.
In addition, parents have organized collaborative efforts with hospitals and other institutions to improve the understanding of Lyme and ensure the medical care of their children is not interrupted by wrongful accusations of child abuse and/or Munchausen by Proxy.
I have not heard that the code for Munchausen by Proxy has been used to replace the code for Congenital Lyme.
*** *** *** *** ***
There is a May 2019 published article that describes these three case studies. See MDPI Article https://www.mdpi.com/2079-6382/8/2/72/pdf Disulfiram (Tetraethylthiuram Disulfide) in the Treatment of Lyme Disease and Babesiosis: Report of Experience in Three Cases Kenneth B. Liegner Received: 28 March 2019; Accepted: 25 May 2019; Published: 30 May 2019
Lyme #LymeDisease #ICD11
Jenna Luché-Thayer is the Founder & Director (volunteer) of this 2018 registered non-profit. She is political analyst, strategist and advocate working across the globe to help institutions remedy entrenched practices of discrimination that interfere with their higher purpose.
Luché-Thayer has 33 years of policy and grassroots experience in 42 countries and works across the globe to help institutions remedy entrenched practices of discrimination that interfere with their higher purpose. She is a former Senior Advisor to the US Government and the United Nations. Her expertise includes government transparency, accountability, human rights and political representation of marginalized groups. She has successfully led many multicultural and multi-disciplinary teams in efforts from the grassroots to the policy level.
Luché-Thayer defined domestic violence as human rights abuse and initiated global human rights reporting on domestic violence, human trafficking and gender-based violence. She is currently documenting, analyzing and putting into UN record the human rights violations against persons suffering from Lyme and relapsing fever borreliosis and their human rights defenders.
Luché-Thayer has worked with governments, the United Nations, nonprofits, corporate world and has over 75 publications. Her awards include: International Woman’s Day Award for Exemplary Dedication and Contributions to Improving the Political and Legal Status of Women (US government), Highest Ranking Technical Area in Accomplishment, Innovation and Comparative Advantage for United Nations Capital Development Fund, the International Lyme and Associated Diseases Society Power of Lyme Award 2018.
“Goddammit, Kimberly – get your clothes on and get your ass out to the car NOW!” Barbara Meredith Wilkinson screamed as Kim sat shaking on the bed, staring blankly through the red twist pile carpet in her room. She started rocking back and forth, her lower lip jutted out in a combination of disbelief and fatigued resignation. Kim’s straight brunette hair was pulled away from her face with a red and white, fleur de lis patterned bandanna allowing the tears to fall uninhibited onto her disease speckled arms.
“Look at you – if you’d stop picking at yourself and wear some goddamn makeup maybe SOMEBODY would marry you. Doesn’t that sound nice Kim? Or are you just happy sitting here, sulking in your bed all day and picking at your skin all night? Jesus – what happened to you? You used to be so smart and now everybody thinks we’re on DRUGS in this house. Kimberly, GET YOUR SHIT TOGETHER.” Barb said thrusting her finger towards Kim, almost as if it was piercing through her and coming out the other side. “I’m going out that fucking door in ten goddamn minutes and if you aren’t dressed and ready to go to Auntie Margaret’s house then you can stay here all by yourself – Lord knows you just need more time to MOPE AROUND THE GODDAMN HOUSE ALL FUCKING DAY .”
The entire house shook when Barbara slammed the door on her way out, Kim was finally relieved however taking the moment to collect herself and formulate a task list. She thought about it for fifteen seconds before springing into action, having organized the sequence of efforts to adequately prepare herself so that she was modestly presentable for the family in the least amount of time. From behind her bathroom door, she acquired a white washcloth with faint traces of rusty brown stains and ran warm water over it in the sink. She looked at herself in the mirror while wringing it out and was glad that today she only had one small sore on her cheek. Across the length of her arms, swollen pink ulcerations with rings of raised ridges around the edges marred the otherwise attractive young lady. Pink tentacles seemed to branch out from the sores in many directions underneath the skin, for certain these lesions didn’t look like your typical spider bites or bee stings.
Kim continued on, wiping down her face with the washcloth and then drying it with her favorite fluffy purple towel. She loved that towel and that towel loved her back, she almost believed it. Foundation, light rouge, mascara – “trouble maker” red lipstick. Let the hair down, comb it out, long sleeve, hunter green, blue jeans, white Nikes, silver dolphin pendant – Voila! A crumbling masterpiece.
For an instant she looked at herself in the mirror and wasn’t ashamed, she looked at the girl in her reflection and thought “that person looks good”. She smiled at the prospect briefly as during her rare moment of self-approval she could hear Barb downstairs picking the keys up off the counter. Kimberly grabbed her white purse from off the dresser and met with her mother downstairs. “You’re wearing THAT? HA! How embarrassing… Well – at least for YOU anyway.” Barb stated against a damaging smirk.
The drive towards Auntie M’s house was short, quiet and uneventful save the amazing scenery of a late spring afternoon in North Austin. The calm blue sky was adorned with well placed, classic white fluffy clouds and the horizon fell behind Cat mountain a few miles off in the distance. Kimberly was always fascinated to see the homes on top of the mountain and wondered what kinds of families lived inside. Did the people living there have kids her age? Were they in college? Could they use their parents’ house for parties when they were out of town? Did they all get along, usually? One day she thought she may, when she gets a car again, take a ride up there and scope out the neighborhoods. Does it truly never hurt to dream?
Margaret’s house was colossal. A playpen for the gregarious typically, the hot tub today, however, would be forgone in favor of well dressed and decked out red picnic tables on the back patio under the great elm tree. “OH MARGIE!!” “OH BARBIE!! It is SO good to see you!!” The two sisters distantly embraced before exchanging faux kisses near the cheek. Barb’s blonde-gray beehive towered above Margarets climbing brunette poofy bangs and Kim wondered if Barb would even LET Auntie have higher hair. “Wait,” she thought to herself, “REALLY?” Rolling her eyes at what she considered was a ridiculous thought, Kim made her way over to the picnic tables while the sisters gabbed and concocted for each other DRANKS at the bar.
“Chip! Let your sister play with the basketball.” “AW COME ON DAD!” “…Chip” “Awwwwwwww….” the younger brother sighed as he passed his pigtailed freckle-faced older sibling the orange and black striped bouncy basketball. The ball made a weird “BOING” sound as it hit the pavement and a thud when Victoria caught it, triumphantly sticking her tongue out in victory. “DAD SHE’S-” “CHIP, your father already told you about talking back. Now come over here and give your aunt Kimberly a hug.” Rebecca said before Victoria dropped the ball and joined her brother with Kimberly, locking her into a ring of hugs around the waist. “Oh… SIGH…THANK Y’ALL” Kimberly squeaked through a deep blush, “Y’all are the best!” she told the kids with a smile. “Come sit with us Aunt Kimmy!” the older sibling pleaded. “Yeah! Tell us about what’s on late night TV, Aunt Kimmy!!” “CHIP!” both parents exclaimed at the same time. “Awwwww!”
“Kim, come sit over here and meet Dave’s brother – Nathan.” Rebecca said to her younger sibling. “Dave and I are going to get a DRANK with mom and Auntie Margaret.” “Or two!” Dave said as the couple giggled together. “KIDS, come on and let’s get ready to get in the pool!” “YAAAYYY!!” The siblings exclaimed heading towards the bar in front of the pool where Barbie and Margie were cutting looks back at the picnic tables, whispering to each other and then giggling like crazy people. Nathan had great teeth and long slick black hair that rode his tanned broad shoulders bulging from the white tank top shirt resting underneath an inconspicuous black Hawaiian button-up short sleeve garnished with electric blue Hibiscus. “Was this a dream?” Kimberly thought.
Short, cute and not full of herself. These were good starts for Nathan – a seasoned construction worker who was attuned to tearing two to three women off his hip throughout each day. When their eyes met something special happened. The glassy darkness of Nathan’s friendly brown peepers for a moment absorbed and reflected Kimberly’s winter frost baby blues, and for an instant and immediately – they felt real love together. “Hey, I’m Nathan! Don’t be shy, you can sit next to me if you like.” the man offered as he was keenly interested in knowing more about this mystery girl he’d heard so little about.
“Thank you, I’m Kimberly…” The two exchanged a light handshake momentarily arrested in each others gaze. “SO, what do you do Nathan? How do you know Rebecca and Dave?” “Well, I’m actually Dave’s brother…” DAMMIT – GREAT, Kimberly just met quite possibly the most GORGEOUS man alive and he actually seemed GENUINELY interested in her and here she was forgetting vital information that her sister had told her just two minutes ago. She’d heard that Dave had an older brother but since he was never talked about and didn’t make the wedding, she almost thought he was a myth. Smooth move, ex-lax. “Oh – that’s right,” Kimberly said with an embarrassed smile, “Becca JUST said that you were Dave’s brother. So well, what do you like to do?”
“Me? Well, I like to read. Have you ever read Naked Lunch? That book is -” “AMAZING, oh my gosh I love that book! Do you like William Golding?” “LORD OF THE FLIES – Brilliant!” The two were getting excited going back and forth, discussing various works of fiction and expressing how much they liked or disliked aspects, themes, characters and locations of several stories – and most of the time they seemed to agree with each other. Nathan saw Kim’s sore but thought nothing of it, to him it was a simple zit. Everything seemed to be going smooth. The two sat there discussing literature for what seemed like only an hour when Barb finally returned to the picnic table three hours later.
“KIM! Kim, it’sh TIME TO GO HOME~! HA HA HA HA HA HA HA HA HA!!” “Mom – you’re drunk!” “YESH!! And THAT’SH Why YOU are DRIVING!” the matron exclaimed while slamming her keys on the table. “I am going to the LADEESH room to powder my NOSE, and when I get back – We Will Ride!” Barb said pointing her finger into the sky before cackling maniacally as she entered into Margaret’s house. “Hey – what’s your phone number?” Nathan asked. “I’ll give you a call this week and maybe we can see a movie or something?” “Sounds great!” Kimberly readily exclaimed punching her phone number into Nathan’s industrial smartphone. The phone’s case was about an inch thick and Kimberly imagined Nathan dropping it from a skyscraper during his lunch break like some kind of Gallelao at the Pisa tower. “There…” she said placing the phone back in his thick, heavily callused hands. “CALL ME!” she stated before being collected by her mother who was starting to complain of a headache and upset stomach.
Nathan watched Kimberly and her mom walk off into the distance before he started to recollect the conversation he’d had about so many great authors and unique perspectives on his favorite books. This was a girl who he really wanted to see more of! Sitting there thinking and grinning to himself, Aunt Margaret came over with a beer and an ash tray. The lady of the house pulled a long thin Capri from the white cigarette pack and lit it with a full-sized Zippo. Inhaling the smoke and holding it in her lungs she asked young Nathan what he thought about Kimberly. “Did you two have a good time?” she said before letting the cigarette smoke blow out her nostrils in deathly pair.
“Oh yeah! Wow, she likes all the same books I like! She’s really cool, you know I was thinking about going out to dinner with her this week and -” “Tsk tsk tsk tsk.” Margaret interjected. “Nathan you are such a handsome man, why would you want to waste your time on someone like that?” “I’m sorry?” Nathan said. “Did I miss something?” he asked with a concerned look drowning out the last bit of grin from his face. Aunt Margaret looked at him grinning, holding her cigarette up in the air before taking another drag and then exclaiming, “She’s crazy Nathan. Didn’t you see her long sleeve shirt – in the middle of May?” Nathan did indeed think that was a strange choice for late Spring but didn’t feel like it was going to be a deal-breaker. “Well, maybe she gets cold – like your sister?” “HA!” Margaret started, “Barb is a diabetic – Kimberly picks at herself, she picks at her skin.” Margaret said through a cut of her eyes. Nathan froze when he heard this, the thought was horrible that this girl he was genuinely interested in spending time with was spending her free time mutilating herself.
Off in the distance, Dave and Becca were rounding up the kids. Nathan still had the phone in his hand after taking it back from Kim. When he hit the power button the screen lit up, still on Kimberly’s entry. The label read, “Kimmy Bookworm”. It made Nathan smirk, for a second, before he remembered that she was a self-harming loonie. The last thing Nathan needed to be known for was taking advantage of a crazy person. He thought about not doing it for a second, then he long pressed and chose the “delete contact” option. “Contact Deleted” the screen now read in front of him. No sir, Nathan sure did not need to be known for taking advantage of some crazy person, and “dang – what a waste” he thought to himself. “Oh well, there’s plenty of fish in the sea.”
In a stunning turn of events last week, Wikipedia France published new information on its Morgellons page that acknowledges the efforts of research scientists to determine an infectious etiology.
This same information is quietly absent from the US Wikipedia, however, keeping most Morgellons patients and caregivers in the dark.
A new emerging infection? As of 2011, some scientists are trying to demonstrate the reality of the disease by defining it as filamentous dermatitis linked to Lyme disease, by publishing one to two articles per year. The main author of the publications is Marianne J. Middelveen, veterinarian, who compared bovine dermatitis or Mortellaro’s disease in animals to Morgellons in humans 13 . Bovine disease is a skin infection associated with various pathogens, including spirochaetes and treponemes . In the animal, the disease is shown as contagious, being able to present papules filiform. Middelveen assumes that morgellons are a human equivalent of bovine digit dermatitis. She regularly publishes works showing an association between Morgellons and Lyme disease 14 ,15 .
Does this mean the tide is finally turning in favor of science? Only time will tell if this entry remains on Wikipedia and if the information “infects” Wikipedia USA.
Preview the following interviews with Morgellons’ leading research microbiologist and scientific expert, Marianne Middelveen, to learn more about what her research has uncovered about this most controversial and highly contested skin condition.
Scientists and physicians across the world have discovered that the growing numbers of people with mental illness and diseases of the nervous system are being cured or improved by treatment with antibiotics. In other words, it is now known that bacteria can make you mentally ill as well as physically ill!
In December of 2018, the Tick-Borne Disease Working Group released its first report to Congress regarding the epidemic of emerging disease. This article gives a basic rundown of relevant statements contained in the first of three TBDWG reports to Congress.
What is the Tick-Borne Disease Working Group?
The TBDWG is a fourteen-member panel of infectious disease professionals called together in light of the 21st Century Cures Act and organized by the Department of Health and Human Services. This group is tasked with reviewing the current science and treatment progress of the various tick-borne diseases and reporting their findings to Congress every two years in December. December 2018 saw the first report, there will be a second report in December 2020 followed by final recommendations at the end of 2022.
So what does this first report detail regarding Morgellons disease? Let’s dive in and find out!
Chronic Lyme Disease
At the start of the first TBDWG report it is stated, “While most Lyme disease patients who are diagnosed and treated early can fully recover, 10 to 20% of patients suffer from persistent symptoms, which for some are chronic and disabling. Studies indicate that Lyme disease costs approximately $1.3 billion each year in direct medical costs alone in the United States.”
Sounds promising, but what about the insensitive testing methods? What does the report say about early diagnosis and why there are so many false negatives? Amazingly the report addresses these concerns directly, “Today, available diagnostic tests can be inaccurate and complex to interpret, especially during the earliest stage of infection when treatment is most effective. Unlike in other infectious disease settings, tests to directly measure the presence of the infecting organism, such as cultures or tissue biopsies, are not available for some tick-borne diseases such as Lyme disease. This leaves physicians without the tools needed to diagnose; and without an accurate diagnosis, it is challenging for physicians to provide early treatment.”
Wow! With that kind of admission about standard Lyme testing, you would expect similar honesty regarding other controversial aspects of Lyme disease. What about congenital transmission then, what does this report state about Lyme infecting unborn children?
Lyme Congenital Transmission
From the report, the sole instance of recognition appears on page 53 in the chapter titled “Treatment”. It states, “Pregnancy: Transplacental infection of the human fetus has been recognized for relapsing fever borreliosis, as well as Lyme disease, babesiosis, and certain arthropodborne flaviviruses. Pregnancy poses particular challenges for treatment because few antimicrobials have been approved and are safe to use during pregnancy. Additional research into appropriate treatment options are needed.”
It’s right there in black and white and from the red, white and blue state of American Freedom and Democracy! Why then would the World Health Organization remove such an apparent consideration from its medical coding system?
But what about Morgellons specifically? What does this report elicit about those afflicted with this particular skin manifestation that’s been thoroughly associated with tick-borne disease?
What’s in the report for Morgellons?
Keyword analysis of the report reveals seventeen instances of the term “skin” speckled throughout. The first instance is regarding frequent skin lesions that occur early in the infectious process. It continues to state that with early treatment the better prognosis can be achieved. While that’s great and everything, what else does it say about skin lesions that may be particularly relevant?
The next two instances of “skin” in the report occur regarding utilizing skin agents to deter ticks from attaching to the skin. The following six instances regard the characteristic erythema migrans bullseye rash and that relates to early diagnosis. This section is interesting in that it elaborates on the many kinds of erythema migrans that can occur and gives a visual presentation of each. Still, none of these erythema migrans look anything at all like Morgellons ulcerations.
The tenth and eleventh occurrence of the term “skin” in the first of three TBDWG reports to Congress are of interest as they describe Figure 10 in the report, “Skin Rashes of Tick-Borne Diseases”. Figure 10.a depicts Tularemia which is a Tick-Borne Infection (TBI) that produces lesions in the skin. The difference between Tularemia and Morgellons, however, is Tularemia does not produce collagenous fibers, which are the defining characteristic of Morgellons disease.
Occurrence twelve describes how skin rashes present early in dissemination and appears alongside a figure that demonstrates how the IgM response falls off over time, leaving a patient with primarily elevated IgG antibodies.
“Skin” appears for the thirteenth and fourteenth time in the report regarding the challenges of diagnosing skin rashes in individuals with darker skin tone. This section stresses the importance of TBI education in areas where Lyme is not considered endemic, as a lapse in diagnosis can result in severe patient complications.
The fifteenth and sixteenth use of the term “skin” appear alongside information regarding how the disease disseminates from the skin to other organs of the body in the sixth chapter which details treatment. This section is completely fascinating, eliciting how infected patients are more susceptible to re-infection and how mice vaccinated against influenza produced a suppressed immune response to the flu in light of their infection with Borrelia burgdorferi. If Lyme disease can suppress the immune response for diseases other than itself, what else can it accomplish?
The final instance of the term “skin” in the TBDWG report to C is alongside recognition of NIAMS, the National Institute of Arthritis and Musculoskeletal and Skin Diseases. We went to the NIAMS website and was not at all surprised to produce a lack of search results for the term “Morgellons“.
Is the TBDWG Report Good?
The first TBDWG Report is surprising. It’s not at all littered with propaganda and falsehoods that plague our esteemed medical establishments. Besides not directly addressing Morgellons the report does reveal several controversial facts about Lyme disease that many in official health agencies currently disagree about. This is a refreshing move in what could be considered a positive direction.
This report did not try to appease the establishment, but at the same time, it doesn’t explore the full extent of the Lyme pandemic. The fact is the fourteen members of the TBDWG have two more reports to produce, and we know for certain many of them are aware of the significance Morgellons has relating to their efforts.
If a grade was to be applied to the first report it feels like this initial effort deserves a solid B+.
THE RESEARCH INSTITUTE FOR INFECTIOUS MENTAL ILLNESS
(The Research Institute for Infectious Mental Illness is no longer open.).
In considering an infectious etiology to any chronic mental illness there are at least four categories to consider. First are those infections already recognized to induce psychiatric symptoms. These include pneumonia, urinary tract infection, sepsis, malaria, Legionnaire’s disease, syphilis, typhoid, diphtheria, HIV, rheumatic fever and herpes. (Ref: Chuang) Continue reading “The Role of Infections in Mental Illness”
It seems as if every year science journals publish new studies that associate Morgellons with chronic Lyme disease. The journal editors publish these studies based on the strength of the evidence presented in the research. Yet year after year few news outlets syndicate these significant findings. What is the controversy in raising awareness about this new Morgellons science? What can we do to combat the media from censoring legitimate research? Continue reading “Why is Lyme Morgellons Science ignored?”