July 15th at 1:00 PM EST – LIVE interview with $lyme author, Jenna Luche-Thayer
Read $lyme: https://amzn.to/2lAp4lN
GLOBAL NETWORK ON INSTITUTIONAL DISCRIMINATION, INC. https://gnid.world/
Subscribe to Jenna’s YouTube: https://www.youtube.com/channel/UCcmsbgMsQUt2s0whXd8YiKw
Follow Jenna on Twitter: https://twitter.com/jennaluche
Friend Jenna on Facebook: https://www.facebook.com/profile.php?id=100011527417750
ICD11 codes: https://icd.who.int/browse11/l-m/en
- What is your book $Lyme about?
- What is the ICD and how well does it influence healthcare practices in America?
- How likely is it that Morgellons will receive a medical code?
- Is it true that better Lyme tests are being suppressed and that the CDC is being sued for this?
- What is Munchausen by proxy syndrome and is the medical code for it being used in place of the recently removed medical code for congenital Lyme transmission? How did the removal for congenital Lyme transpire? *** See updated response below ***
- Is it the case that the denial of timely diagnosis and responsible treatment for Lyme are profitable? Who does this negligence benefit?
- We’ve seen in the media and on social networks how Lyme Literate doctors are labeled as quacks and kooks and the patients they treat as nutjobs. Is this a concentrated strategy and who is perpetuating it?
- In your book, you talk about a lady who reported doctors whose tests revealed “too many” Lyme patients in the United Kingdom. How did this transpire and what was the eventual outcome?
- What is the Tick-Borne Disease Working Group and was their first report to Congress beneficial for Lyme patients?
- You talk about suffering from infections yourself in $Lyme, what infections are those and how have they affected your life?
- Have you ever felt that you were marginalized by the medical system?
- Is Lyme accepted if it is diagnosed clinically and will insurance pay for the treatments? Is it the case that long term antibiotics can improve Lyme patients quality of life?
- What does it mean when patients develop Post Treatment Lyme Syndrome?
- What should a patient do if they are desperate for treatment and proper diagnosis?
- What are some of the unintended outcomes from this environment that denies patients early diagnosis and long-term treatment?
- In your book, you describe how patients are offered euthanasia instead of antibiotics to treat Lyme. Is this for real?
- Your book features extremely humorous and very personable cartoons by David Skidmore, how did you two end up working together?
- Who are the Dream Team members and how did they assist in your efforts?
- What are the current goals of yourself and the Dream Team?
- What can people do who want to help you and the Dream Team make a difference in how Lyme patients are treated in our society?
*** UPDATED RESPONSE BY Jenna Luche-Thayer 8/8/19 ***
Munchausen by Proxy is a very rare mental health illness whereby a caregiver abuses a vulnerable person. The caregiver does this by fabricating an illness or injury in a person under his or her care, such as a child, person with a disability or an elderly adult. Confusion, misinformation, disagreement and ignorance regarding Lyme borreliosis and Lyme treatment has resulted in parents who have children with Lyme being wrongly accused of child abuse and/or Munchausen by Proxy in Europe, the US, Canada, and Australia.
Unfortunately, the medical disagreement over how to treat Lyme borreliosis has been wrongly used to make charges of child abuse and/or Munchausen by Proxy.
Fortunately, parents have successfully overturned these wrongful accusations.
Parents have also reported those persons who made the wrongful charges, and this has resulted in formal reprimands and other punishments.
In addition, parents have organized collaborative efforts with hospitals and other institutions to improve the understanding of Lyme and ensure the medical care of their children is not interrupted by wrongful accusations of child abuse and/or Munchausen by Proxy.
I have not heard that the code for Munchausen by Proxy has been used to replace the code for Congenital Lyme.
*** *** *** *** ***
There is a May 2019 published article that describes these three case studies. See MDPI
Article https://www.mdpi.com/2079-6382/8/2/72/pdf
Disulfiram (Tetraethylthiuram Disulfide) in the
Treatment of Lyme Disease and Babesiosis:
Report of Experience in Three Cases
Kenneth B. Liegner
Received: 28 March 2019; Accepted: 25 May 2019; Published: 30 May 2019
Lyme #LymeDisease #ICD11
Jenna Luché-Thayer is the Founder & Director (volunteer) of this 2018 registered non-profit. She is political analyst, strategist and advocate working across the globe to help institutions remedy entrenched practices of discrimination that interfere with their higher purpose.
Luché-Thayer has 33 years of policy and grassroots experience in 42 countries and works across the globe to help institutions remedy entrenched practices of discrimination that interfere with their higher purpose. She is a former Senior Advisor to the US Government and the United Nations. Her expertise includes government transparency, accountability, human rights and political representation of marginalized groups. She has successfully led many multicultural and multi-disciplinary teams in efforts from the grassroots to the policy level.
Luché-Thayer defined domestic violence as human rights abuse and initiated global human rights reporting on domestic violence, human trafficking and gender-based violence. She is currently documenting, analyzing and putting into UN record the human rights violations against persons suffering from Lyme and relapsing fever borreliosis and their human rights defenders.
Luché-Thayer has worked with governments, the United Nations, nonprofits, corporate world and has over 75 publications. Her awards include: International Woman’s Day Award for Exemplary Dedication and Contributions to Improving the Political and Legal Status of Women (US government), Highest Ranking Technical Area in Accomplishment, Innovation and Comparative Advantage for United Nations Capital Development Fund, the International Lyme and Associated Diseases Society Power of Lyme Award 2018.
Hi Jeremy have you seen the article and comments on “Avoid long term antibotics for chronic lyme”? It’s really scaring the daylights out of me and I was diagnosed with severe anxiety several years ago they don’t have a name for what I have now after suffering all those years (extremely severe?? haha)
Was it this one? https://sciencebasedmedicine.org/avoid-prolonged-antibiotics-for-chronic-lyme/ Unfortunately this article presumes the infection cannot be persistent, but science says otherwise: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6023324/
Yes I know cause they’ve tried to eat me alive on the comments I’ve made. Apparently, the evidence that has helped me crawl somewhat out of my bodily torture chamber is “not good enough” and literally humorous to many. Because evidence based medicine is apparently about me not getting appropriate skin testing and diagnosed with severe forms of unknown etiology things with medicines that don’t work so my torture chamber carried on for almost 10 years. Have you tried to send them any evidence or comment on the progress you have made by taking long term antibiotics? I’m not a fan of them and it makes me feel like shit but better than a literal human torture chamber if you know what I mean!
Oh and by the way this is Sharon. We’ve communicated a couple of times but my granddaughter messes with my phone so it comes over in her name.
Ohhh!