Pi Ware LIVE Interview


Pi well known for his accomplishments including ingenious editing work for NBC, CBS, and HBO. He has worked on productions including “Lost Kubrick: The Unfinished Films of Stanley Kubrik”, “The Business End: Violence in Cinema”, and “In the Master’s Shadow: Hitchcock’s Legacy”. Pi was nominated four times for his editing work and secured the coveted award for his efforts on the 2012 Rock and Roll Hall of Fame Inductions.

Recently Pi has been lending his expertise to popular shows like American Idol, Rising Star, America’s Got Talent, World of Dance, and even this years’ Dave Chappelle: The Kennedy Center Mark Twain Prize for American Humor.

Thank you for joining us Pi, it’s good to see you again!

  1. What compelled you to create Skin Deep, and how did that process evolve?
  2. Is there anything you wish you could have kept in the final cut?
  3. Did anything about the filming of Skin-Deep impact you in a way you weren’t expecting?
  4. Are you experiencing any kind of social exclusion for being associated with Morgellons?
  5. In filming Skin Deep, did you imagine what it was like to have Morgellons?
  6. What inspired you to direct Solitude?
  7. How has your technique improved since filming Solitude and going into Skin Deep?
  8. What do you feel Morgellons patients need the most and what most can they do for themselves to help?
  9. What is the best path forward to gaining the legitimization of MD in your opinion?
  10. Is there going to be a sequel or Directors cut to Skin Deep?
  11. How do you deal with unruly actors?
  12. In your opinion, what is the most important quality of a movie director?
  13. How did you feel when you won the Emmy?
  14. Why does the film industry seem to squander good IP’s?
  15. If you could remake any film what would it be?
  16. What kind of movies do you want to go on to direct from here?
  17. How can someone get their own copy of Skin Deep: The Battle Over Morgellons?

Skin Deep Movie Review and Interview with Director, Pi Ware

To order your Educational or Community copy of Skin Deep: The Battle Over Morgellons visit  https://www.morgellonsmovie.org

#SkinDeep: The Battle Over #Morgellons from Director #PiWare. How Deep Does It Go?

Skin Deep allows its’ audience to experience the reality of Morgellons through the emotions of the individuals who play a role in establishing the history of this cryptic phenomenon. Through these characters, we feel elation, self-consciousness, desperation, fear, and devastation all while the wheels of time deliver us to compelling milestone achievements in an ongoing scientific investigation. Skin Deep memorably carries its’ viewer through the origins of modern-day Morgellons disease up to the latest scientific revelations. People who see this film will know what it feels like to have Morgellons, will relate to the characters that are skeptical about what Morgellons is, and will remember how they felt the moment they realized that Morgellons is a real disease.

Skin Deep presents the story of Cindy, a registered nurse with Morgellons, as she navigates from a career and progresses through marriage to ultimately becoming Director of the organization which funds research initiatives and is named after her late husband, Charles Holman.

Through the film, we see other characters elsewhere, each experiencing Morgellons from their own point of view. Characters on each front, believers and skeptics alike and even those on the sidelines that are analyzing the effects of patients experiencing a contested disease. We see two brothers torn apart by their differing experiences with the disease and witness their efforts to reconcile after. Skin Deep accomplishes presenting the Morgellons phenomenon in a way that the general audience can relate to.

Dr. Feldman, for example, is an accomplished dermatologist who sees many Morgellons patients in his practice. From his perspective, Morgellons is a psychological disorder. Don’t be quick to assume he is the antagonist, however. In fact, the film demonstrates that Dr. Feldman treats each of his patients with respect and genuinely cares about their wellbeing.

The transition between how doctor Feldman experiences Morgellons, and how Cindy experiences Morgellons, culminate when she invites him to speak at the annual Morgellons Disease Conference in Austin Texas where the latest scientific findings are presented.

Feldman and Marianne Middelveen discuss the fiber composition and she points out she doesn’t have a blue head of hair.

One scene defines the narrative and illustrates the struggle of this story, the quest for knowledge. There’s an old saying, “Knowing is half the battle.”

In this scene, Dr. Feldman sits with microbiologist Marianne Middelveen while she shows him what her research demonstrates in regard to an infectious agent, and how the fibers of Morgellons patients are of human origin and not textile in nature. Let’s look at his reaction in that scene:

As we can see, Dr. Feldman stops and thinks about the knowledge that Marianne presents to him. His educated understanding of a serious condition is challenged, he’s aware Morgellons causes his own patients a great deal of pain and trauma, but can he accept the evidence that there’s an infectious process behind it?

Charles Holman himself is revealed to many for the first time in this film and is, deservedly, reveled throughout. His devotion to Cindy is particularly moving as the movie progresses. 
There are several memorable characters in Skin Deep, but Charles Holman himself steals the show early on as we relive his romance with Cindy and empathize with his concern about her mysterious condition. Through old video and audio recordings Skin Deep affords us the opportunity to meet Charles Holman. We’re there as Charles and Cindy experience skepticism by professional dermatologists, and when they are featured on the local news in a piece showcasing the contested illness. We see him try to reason with doctors on Cindy’s behalf before another dermatologist describes a condition where both husband and wife are delusional. Charles embodies the struggle of having Morgellons one day universally recognized, and to that end, it is fitting the organization Cindy heads up is named in his honor.

One of the best aspects of this film is the sound design. The director manages to capture the emotions of each of the players and convey them back to the audience with the reinforcement of moving ambiance. If you are an audiophile, you won’t be disappointed here. The story has clear progression and the endings for each of the characters are truly memorable. So, does Skin Deep go deep enough? Viewers of Skin Deep will walk away knowing that the Morgellons phenomenon didn’t end with the CDC study in 2012 and that patients very much need and deserve better treatment.

  1. Introduction, who is Pi Ware and who are your influences as a filmmaker? 
  2. How did you get involved with Morgellons?
  3. Were you skeptical about Morgellons being real and how did that view evolve over time?
  4. What was the hardest part about filming Skin Deep?
  5. How can we utilize this film to help society understand that Morgellons is not a psychosomatic condition? 

Image URL:
Jorge Simonet [CC BY-SA 4.0 (https://creativecommons.org/licenses/by-sa/4.0)]

The Charles E. Holman Morgellons Disease Foundation Announces World Premier of the Movie “Skin Deep: The Battle Over Morgellons.”

The documentary Skin Deep: The Battle Over Morgellons will celebrate its World Premiere on October 5th at the Awareness Film Festival in Los Angeles. Skin Deep was directed by Emmy-winning editor and filmmaker Pi Ware. The film investigates the fierce controversy surrounding the disease known as Morgellons.

Morgellons disease symptoms include fatigue, slow-healing lesions, GI disturbances, and—most notably —fibers growing from patients’ skin. Morgellons became controversial when a large portion of the medical industry declared those symptoms to be nothing more than products of delusional minds. Joni Mitchell may be the most famous of the victims of Morgellons disease, but there are tens of thousands of people who currently suffer. Multiple studies put the estimate at 18,000 new cases a year.

Recent peer-reviewed scientific evidence that links Morgellons to Lyme disease has proven that the source of the suffering is biological–likely a bacteria named borrelia–suggesting that there may be another delusion at play here: the denial of the science, symptoms and suffering of Morgellons patients.

Skin Deep began filming in the spring of 2015. The film follows several Morgellons patients and physicians who treat them—using antibiotics or anti-psychotics depending on the doctor’s belief system. The film focuses on the battle between a nurse (Cindy Casey-Holman) who is convinced she has a biologically-based disease and a skeptical dermatologist (Dr. Steven Feldman) who favors psychiatric diagnoses. The film climaxes in a showdown at the Morgellons Conference in Austin, Texas, where bridges between doctors and patients will either be built… or burned.

While Skin Deep: The Battle Over Morgellons gives voice to both sides of the debate, the film focuses on the new science and the need for empathy for those patients mercilessly caught between doubt and a lengthy scientific process. Says director Pi Ware, “With many new diseases, there is a period of time before the science of the disease is widely accepted, a time when doctors say, ‘What you’re suggesting goes against what I learned in medical school,’ a time when patients are vulnerable to the prejudice and arrogance of otherwise well-meaning physicians.” Medical history is filled with similar examples: from ulcers (once believed to be caused by stress, now proven to be caused by bacteria) to Multiple Sclerosis (often blamed on “hysteria” until CAT scans were invented) to lupus (over 50% of all lupus patients have been told their symptoms are “all in their head”). Adds Ware, “There exists a period of time when the victims of a disease are ‘blamed’ for their disease, and the resulting shame, confusion and anger doubles their suffering. Morgellons patients are living in that time right now.”

View the Trailer for the film at morgellonsmovie.org.

World Premiere tickets on sale now at awarenessfestival.org

Skin Deep: The Battle Over Morgellons; writer/director, Pi Ware; produced by Lev Mergian, Laura Stoddard, Gary Leva, Patrick Belton, Pi Ware; directors of photography, Sam Price-Waldman, Alex Naufel, Jacob Pinger, PJ Raval; music, Andrew Gross; executive producers, Denise and Jerry James; co- producers, Shelby Hadden, Sydney Niemerow; editors, Tom Putnam, Pi Ware.
Contact: morgellonsdoc(at)icloud(dot)com
What: Skin Deep: The Battle Over Morgellons at Awareness Film Festival When: Saturday October 5, 2019, 2pm
Where: Regal Cinemas LA Live, 1000 W Olympic Blvd, Los Angeles, CA 90015

About the Charles E. Holman Morgellons Disease Foundation:
The Charles E. Holman Morgellons Disease Foundation, based in Austin, TX, is a 501(c) (3) nonprofit organization committed to advocacy and philanthropy in the battle against Morgellons disease. Director, Cindy Casey-Holman, RN, leads the foundation, named for her husband, Charles E. Holman, a pioneer in the fight against Morgellons disease. Currently, there is no public funding and very limited private funding to support research for this disease, and the CEHMDF is the recognized authority and primary funding source for Morgellons disease medical/scientific research. Donations are tax-deductible​ in the US. To learn more about Morgellons disease go to: http://www.MorgellonsDisease.org
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