About the Founder
About Jeremy Murphree
Jeremy Murphree is a Morgellons and Lyme patient advocate, writer, podcast host, and community organizer focused on helping patients document their experience, understand the research, and find more respectful conversations with clinicians.
MorgellonsSurvey.org is an educational and patient-advocacy resource. Jeremy is not a physician and does not provide medical diagnosis or treatment.
Patient Advocacy
A patient advocate with a research-first approach
Jeremy created MorgellonsSurvey.org to give patients, families, researchers, and clinicians a more organized place to learn about Morgellons disease, skin findings, fibers, diagnostic challenges, and the overlap many patients report with Lyme disease and other tick-borne illness.
His work is grounded in lived experience, patient documentation, published research, and a belief that people with unexplained skin symptoms deserve to be examined carefully instead of dismissed.
The purpose of the site is to separate documented observations from fear, speculation, and misinformation while giving patients a place to better understand and communicate what they are experiencing.
Important note
Jeremy is not a physician and does not provide medical diagnosis, treatment, or individualized medical advice. MorgellonsSurvey.org is an educational and patient-advocacy resource.
Patients should work with licensed healthcare professionals for diagnosis, treatment decisions, and medical care.
Why This Site Exists
Why Jeremy started MorgellonsSurvey.org
Like many patients, Jeremy’s interest in Morgellons did not begin as an abstract research topic. It began with symptoms, uncertainty, unanswered questions, and the experience of trying to make sense of skin findings that were difficult to explain.
Over time, that personal experience became advocacy. Jeremy began collecting research, interviewing patients and clinicians, organizing educational resources, and encouraging people to document their symptoms carefully rather than rely on panic, shame, or internet rumor.
The goal of this site is not to tell every patient what is happening to them. The goal is to help patients become better organized, better documented, and better prepared for conversations with qualified healthcare professionals.
Guiding Principles
What guides his work
MorgellonsSurvey.org is built around careful documentation, respect for patients, and a commitment to separating evidence from fear.
Evidence over fear
Morgellons is surrounded by confusion, stigma, and speculation. Jeremy’s work focuses on documented observations, published literature, and careful language.
Documentation matters
Patients are encouraged to photograph findings consistently, preserve context, avoid extreme self-treatment routines, and communicate clearly with clinicians.
Patients deserve respect
People reporting unusual skin symptoms should be heard, examined, and treated with dignity, even when their condition is difficult to understand.
Community Work
Advocacy, education, and patient support
- Creator of MorgellonsSurvey.org, an educational resource focused on Morgellons disease, documentation, research, and patient support.
- Host of the Morgellons Discussion podcast, featuring conversations about patient experiences, clinical perspectives, and emerging research.
- Administrator of the Facebook community MORGELLONS/LYME AWARENESS – All Science, No BS.
- Developer of free educational materials for patients seeking a more organized way to understand and document their symptoms.
- Advocate for more careful clinical examination, better patient communication, and more serious scientific attention to Morgellons.
Editorial Approach
How MorgellonsSurvey.org approaches difficult topics
MorgellonsSurvey.org is written from the perspective of patient advocacy. The site discusses published research, patient reports, clinical observations, and diagnostic controversies while making clear distinctions between evidence, interpretation, and personal experience.
Jeremy’s goal is to create a calmer and more useful resource for patients and clinicians. Articles on this site are intended to help readers understand the available research, document their own symptoms more carefully, and seek appropriate medical evaluation.
When possible, articles on MorgellonsSurvey.org cite published research, clinical observations, or primary sources. The site also discusses patient experience because patient reports are often where overlooked medical questions first become visible.
A Note to Patients
You are not alone, and your experience deserves careful attention.
If you are experiencing unexplained skin lesions, fibers, crawling sensations, slow-healing wounds, or other symptoms associated with Morgellons, your experience deserves careful documentation and respectful medical attention.
Document symptoms under consistent lighting, avoid aggressive cleaning or self-treatment routines, and look for clinicians willing to examine lesions and consider infectious, dermatologic, neurologic, and environmental explanations.
Start Here
Start with the research. Document carefully. Seek respectful care.
New visitors may want to begin with the site’s introduction to Morgellons, research summaries, patient documentation resources, and doctor-finder information.
