Morgellons Disease Research • Patient Survey • Advocacy
Morgellons Disease: Research, Symptoms, Fibers, and Patient Experience
MorgellonsSurvey.org is a patient-advocacy and research resource for people trying to understand Morgellons disease, its proposed relationship to spirochetal infection, the science of skin filaments, and the lived experience of patients who are still fighting to be heard.
Educational information only. This site is not a substitute for diagnosis, treatment, or medical advice from a licensed physician.
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What is Morgellons?
Morgellons disease is most often described as a skin-related condition involving slow-healing lesions, unusual sensations in or on the skin, and microscopic filaments that may appear embedded in, attached to, or projecting from the skin. Patients commonly report that these findings are difficult to explain, difficult to document, and often dismissed before they are carefully examined.
The condition remains controversial. Some medical sources describe Morgellons as an unexplained dermopathy or associate it with delusional infestation, while other published papers have proposed that Morgellons may be linked to Lyme disease, tick-borne illness, Borrelia infection, or other spirochetal disease processes.
This site takes a careful approach: document observations, read the research, avoid panic claims, and seek open-minded clinical evaluation.
New to Morgellons?
Document symptoms, photograph skin findings consistently, avoid extreme self-treatment, and seek a clinician open to infectious, dermatologic, neurologic, and environmental causes.
Featured Video
Morgellons Histology and Skin Filament Research
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Main Morgellons Topics
Use these sections to understand symptoms, fibers, testing questions, patient resources, and the research conversation around Morgellons disease.
Symptoms
Patient-reported symptoms, skin findings, lesions, sensations, and why careful documentation matters.
Fibers
Research discussion around skin filaments, keratin, collagen, pigmentation, black specks, and microscopy.
Doctors
How to look for a clinician who will examine skin findings, review history, and avoid immediate dismissal.
Testing
Clinical evaluation, documentation, and why a single negative test may not end the investigation.
Resources
Books, films, patient resources, documentation tools, and practical links for people researching Morgellons.
Misinformation
Separate Morgellons research from internet myths, exploitation, panic content, and unsupported claims.
Patient Survey
Take the Morgellons Survey
Please only take this survey if you have, or believe you have, Morgellons. Your participation helps document patient experience and preserve information that may otherwise be ignored.
Research
Published Research and Scientific Context
Morgellons remains controversial, but it has also been discussed in peer-reviewed literature. These papers and resources are useful starting points for patients, advocates, and clinicians.
- Filament formation associated with spirochetal infection: a comparative approach to Morgellons disease
- Exploring the association between Morgellons disease and Lyme disease
- Morgellons disease: a filamentous borrelial dermatitis
- Classification and Staging of Morgellons Disease: Lessons from Syphilis
- View the full research library
FAQ
Morgellons Disease FAQ
Is Morgellons contagious?
Morgellons is best discussed as a condition associated by some researchers with infectious processes, especially Lyme and tick-borne illness. That does not mean Morgellons lesions or fibers themselves should be treated as contagious objects. Ask a licensed clinician about infection risk, testing, and household concerns.
What are Morgellons fibers made of?
Published Morgellons papers have described cutaneous filaments as biofilaments associated with skin tissue, with discussion of keratin and collagen rather than synthetic textile fibers.
Did the CDC prove Morgellons patients are delusional?
No. A better approach is to examine each patient carefully, document objective findings, and distinguish true observations from mistaken interpretations, contamination, unrelated skin conditions, and psychiatric explanations when appropriate.
What should I do if I think I have Morgellons?
Document your history, take clear photos, avoid extreme self-treatment, seek medical evaluation, and bring organized notes to your appointment.
Updates
Latest Articles
Recent articles, videos, patient advocacy updates, research commentary, and Morgellons-related news from MorgellonsSurvey.org.
- If Lyme Disease Isn’t Supposed to Be in Australia, Why Is Morgellons Reported There?
- Morgellons Doesn’t Automatically Mean Lyme Disease — Here’s Why
- Morgellons and Lyme Disease: Evidence, Misinformation, and Support Group Red Flags
- When It Might Not Be Morgellons: How to Rule Out Lookalikes Without Dismissing Patients
- Lyme Disease Origins: Bioweapon Claims, Plum Island, Bitten, and What the Evidence Shows
- Over 10,000 Ticks Tested: Bartonella Is Not a Tick Infection
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Support the Morgellons Survey Project
Help document patient experience, preserve research, challenge dismissal, and make responsible information easier to find.