Support Morgellons Survey • Patient Advocacy • Research Awareness
Support Morgellons Survey
Morgellons patients are often discussed without being carefully heard. You can support this project by taking the survey, sharing reliable resources, suggesting clinicians, submitting useful research, reporting outdated information, and helping build a more organized patient evidence base.
This page is about non-financial support and community participation. To make a financial contribution, visit the Donate page.
Start Here
The Most Important Way to Help
The strongest way to support Morgellons Survey is to participate in the survey and share it with people who have experienced Morgellons-like symptoms, unexplained skin findings, fibers, lesions, crawling sensations, tick-borne illness, or medical dismissal.
Better patient data can help identify patterns, improve public understanding, and support a more organized discussion between patients, researchers, clinicians, and advocates.
Support does not have to mean money
Sharing the survey, correcting outdated links, suggesting patient-friendly clinicians, and sending useful resources can all make the project stronger.
Ways to Help
Three Simple Ways to Support the Mission
These actions help the site reach more patients while keeping the conversation focused on documentation, research, and patient safety.
1. Take the Survey
Share your experience with symptoms, skin findings, fibers, testing, diagnosis, medical care, and barriers to treatment.
2. Share the Project
Share MorgellonsSurvey.org with patient groups, Lyme disease communities, chronic illness forums, researchers, clinicians, and advocates.
3. Share the Research
Help move the conversation toward published research, careful documentation, and honest uncertainty.
Community Support
Other Ways to Support the Mission
Suggest a Doctor or Patient-Friendly Clinician
Patients often struggle to find clinicians willing to examine lesions, review skin findings, consider tick-borne illness history, and approach Morgellons without immediate dismissal. You can help by suggesting clinicians who listen carefully and evaluate patients responsibly.
Helpful details: clinician name, clinic name, city/state, website, specialty, and why the clinician may be relevant to Morgellons or tick-borne disease patients.
Submit a Research Paper, Book, Film, or Resource
MorgellonsSurvey.org is building a more organized resource library for patients, families, researchers, and clinicians. You can help by submitting relevant studies, PubMed links, documentaries, books, presentations, patient education resources, or documentation guides.
Resources are reviewed before being added. Inclusion does not mean endorsement of every claim made by an author, researcher, publisher, filmmaker, clinician, community, or organization.
Report Broken Links or Outdated Information
Accurate information matters. Please report broken links, outdated pages, missing citations, confusing wording, or resources that should be updated. Small corrections help keep the site more useful, credible, and patient-friendly.
Help With Outreach
Outreach helps the survey reach more patients and makes it easier for researchers, clinicians, advocates, and journalists to understand the patient experience. Share the site with respectful communities, patient advocates, podcast hosts, Lyme disease organizations, dermatology contacts, and researchers interested in unexplained skin conditions.
Patient Resources
Use and Share Patient Resources
Books and Patient Resources
Explore curated books, films, patient communities, documentation tools, and educational resources related to Morgellons disease, Lyme disease, and patient advocacy.
Find a Doctor
Review practical steps for finding a clinician willing to evaluate symptoms carefully, examine skin findings, and consider infectious, dermatologic, neurologic, immune, and environmental explanations.
A Note About Patient Safety
Morgellons patients deserve to be taken seriously, but they also deserve protection from fear-based claims, unsafe self-treatment, miracle cures, and exploitation. This project encourages careful documentation, open-minded clinical evaluation, and responsible discussion of the research.
Nothing on this website should be used as a substitute for medical care. If you have worsening skin lesions, signs of infection, severe pain, neurological symptoms, or urgent health concerns, seek medical attention from a qualified professional.
Want to Contribute Financially?
Financial support is appreciated, but it belongs on the separate Donate page. The most important contribution remains taking and sharing the survey.
