Support Morgellons Survey • Patient Advocacy • Research Awareness
Support Morgellons Survey
Morgellons patients are often discussed without being carefully heard. You can support this project by taking the survey, sharing reliable resources, suggesting clinicians, submitting useful research, and helping build a more organized patient evidence base.
MorgellonsSurvey.org exists to help patients, families, researchers, clinicians, and advocates approach Morgellons disease with more documentation, better education, and less fear-based misinformation.
The Most Important Way to Help
The most important way to support Morgellons Survey is to participate in the survey and share it with people who have experienced Morgellons-like symptoms, unexplained skin findings, fibers, lesions, crawling sensations, tick-borne illness, or medical dismissal.
Better patient data can help identify patterns, improve public understanding, and support a more organized discussion between patients, researchers, clinicians, and advocates.
1. Take the Survey
Share your experience with symptoms, skin findings, fibers, testing, diagnosis, medical care, and barriers to treatment. Every serious response helps build a clearer picture of what patients are reporting.
2. Share the Project
Share MorgellonsSurvey.org with patient groups, Lyme disease communities, chronic illness forums, researchers, clinicians, and people who are trying to understand Morgellons without fear-based misinformation.
3. Share the Research
Help move the conversation toward published research, careful documentation, and honest uncertainty. The research library is designed to help patients and families separate useful information from unsupported claims.
Other Ways to Support the Mission
Suggest a Doctor or Patient-Friendly Clinician
Patients often struggle to find clinicians willing to examine lesions, review skin findings, consider tick-borne illness history, and approach Morgellons without immediate dismissal. You can help by suggesting clinicians who listen carefully and evaluate patients responsibly.
Helpful details: clinician name, clinic name, city/state, website, specialty, and why the clinician may be relevant to Morgellons or tick-borne disease patients.
Submit a Research Paper, Book, Film, or Resource
MorgellonsSurvey.org is building a more organized resource library for patients, families, researchers, and clinicians. You can help by submitting relevant studies, PubMed links, documentaries, books, presentations, patient education resources, or documentation guides.
Resources are reviewed before being added. Inclusion does not mean endorsement of every claim made by an author, researcher, publisher, filmmaker, clinician, community, or organization.
Report Broken Links or Outdated Information
Accurate information matters. Please report broken links, outdated pages, missing citations, confusing wording, or resources that should be updated. Small corrections help keep the site more useful, credible, and patient-friendly.
Help With Outreach
Outreach helps the survey reach more patients and makes it easier for researchers, clinicians, advocates, and journalists to understand the patient experience. You can help by sharing the site with respectful communities, patient advocates, podcast hosts, Lyme disease organizations, dermatology contacts, and researchers interested in unexplained skin conditions.
Use and Share Patient Resources
Books and Patient Resources
Explore curated books, films, patient communities, documentation tools, and educational resources related to Morgellons disease, Lyme disease, and patient advocacy.
Find a Doctor
Review practical steps for finding a clinician willing to evaluate symptoms carefully, examine skin findings, and consider infectious, dermatologic, neurologic, immune, and environmental explanations.
A Note About Patient Safety
Morgellons patients deserve to be taken seriously, but they also deserve protection from fear-based claims, unsafe self-treatment, miracle cures, and exploitation. This project encourages careful documentation, open-minded clinical evaluation, and responsible discussion of the research.
Nothing on this website should be used as a substitute for medical care. If you have worsening skin lesions, signs of infection, severe pain, neurological symptoms, or urgent health concerns, seek medical attention from a qualified professional.
Donate to Support the Project
Donations help support website costs, patient education, resource organization, outreach, and future improvements to Morgellons Survey. Financial support is appreciated, but the most important contribution remains taking and sharing the survey.
Ready to Help?
The strongest way to support the project is to take the survey and share it with people who may benefit from a more organized, evidence-aware approach to Morgellons disease.
