How to Successfully Advocate for Morgellons Disease: A Guide for Patients and Caregivers

How to successfully advocate for Morgellons disease

Introduction: What is Morgellons Disease and How Can You Become an Advocate? How to Successfully Advocate for Morgellons Disease. Morgellons Disease is a chronic skin condition that is characterized by the presence of malformed hairs, and other debris inside the skin. It is often accompanied by intense itching and crawling sensations. The cause of Morgellons … Read more

Letter to Psychiatrists and Dermatologists regarding Morgellons Disease

man in black sweater and blue denim jeans sitting on brown wooden rocking chair

For Morgellons Disease Awareness Month 2022, we have prepared this letter which can be mailed to your local Dermatologists and Psychiatrists regarding patients concerned about “Morgellons”. Dear Dr. _______,My name is _________________, and I am a “Real Morgellons” patient/advocate. At this point you may be wondering why I feel there is any difference between “Morgellons” … Read more

Media Personality Alana Jordan Goes Public About Her Morgellons Experience

Alana Jordan Morgellons

On the night of November 8th, 2021, media personality Alana Jordan went public about her personal experience with Morgellons Disease and associated stigma. The hour and a half long live-stream on Twitch was accompanied by insightful questions from a sympathetic audience. Jordan was diagnosed with Morgellons by a medical physician and received a positive reaction … Read more

Key Morgellons Petition Clears One Million Signatures Milestone

One Million Signatures Morgellons Petition

One Million Signatures Morgellons Petition. A key petition to the President, Congress, and the CDC cleared a milestone achievement of one million signatures on September 29th, 2021. This gesture affirms that Morgellons patients are united in seeking validation, responsible diagnosis and treatment, and research into prevention and possible cures. Can America turn its’ back on … Read more

What The AIDS Movement Of The 1980’s Can Teach Morgellons Patients

ACT UP AIDS Movement of the 1980's

Lessons from The AIDS Movement of the 1980’s for Morgellons patients. There’s a broad difference between being a troll and speaking to facts that people often don’t want to discuss. The true craft of debate is not taking your opinions personally so that they become impeding principles. You can lose many friends along the way … Read more