On the night of November 8th, 2021, media personality Alana Jordan went public about her personal experience with Morgellons Disease and associated stigma. The hour and a half long live-stream on Twitch was accompanied by insightful questions from a sympathetic audience. Jordan was diagnosed with Morgellons by a medical physician and received a positive reaction on a Lyme disease test.
Alana Jordan was born on May 17, 1987 in Alabama, USA. She is an actress and producer, known for Herlock, The Blind Side and Missing Pieces.Alana Jordan – IMDb
Marginalized Patient Experience
During the livestream Miss Jordan explained how Morgellons is not well researched, barely understood, and highly stigmatized. In fact, she goes on to describe a horrific experience at the emergency room when she was in severe pain, especially frightened, and highly fatigued. Jordan’s experience, like so many other patients with Morgellons, was initially marginalized.
By going public with her diagnosis Alana Jordan hopes to dispel the myth that Morgellons is a psychosomatic delusional state, and stress the importance of physicians and family to take this disease seriously. In fact, Jordan herself explains that it was only recently that she learned Morgellons disease is real. This demonstrates how much work Morgellons patients have ahead towards gaining general recognition of this contested illness.
Alana Jordan Discusses Morgellons
To learn more about Morgellons, please consider this free online course that teaches the basics while providing resources towards patient care. https://morgellons.teachable.com